Date(s) - 10/19/2019
The Shops at Fallen Timbers
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Join the Rinaldi Family for the 1st annual Hope 4 Landon Run & Walk where runners will be running to the finish to raise awareness for the “Worst disease you’ve never heard of” called Epidermolysis Bullosa (EB). This event is to honor their son Landon and all the others who are fighting this disease everyday for hope of a cure or even a treatment to slow the disease down.
Come meet Landon (psst…it is his birthday as well) and help raise awareness for his rare genetic skin disease Learn more about it below.
Join them for a fun fall morning 4 mile run at The Shops at Fallen Timbers on October 19, 2019 at 9am. They will have a 1 mile walk to follow after the start of the 4 mile race.
The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients’ care. debra of America is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with EB.
Learn More and Register at runsignup.com/hope4landon.